Saturday, August 22, 2020

Random Tid bits

  1. This week my sister had her baby girl. What I thought would be a really positive experience has flipped into being difficult. Margaret (my niece) was breech. They got her flipped, so my sister was induced. The umbilical cord was wrapped around her legs and arms. Off to an emergency C-Section she went. My sister lost a lot of blood.  

    They took Margaret, and put her in the NICU. She was having mini seizures, so she got put on a cooling mat. I thought in the photos she looked more like her brother Emerson that has Trisomy 18, than her other brothers. 

  2. When my sister was pregnant she got a blood test. All results showed that Margaret is normal. We now know she does have Trisomy 18 like Emerson does. 

  3. I've been feeling excited with a new baby about to happen, sad that she had to be taken via c-section, angry that her brothers that have no chromosome problems will have even more attention taken from them, and not knowing how to feel. I love my nephew Emerson,  but he's a lot of of work. He has had tons of medical issues. He’ll never know what it’s like to live without pain. 


  4. If someone taught a Psychology course...my family that has at least 3 carriers of Trisomy 18 would be a great topic. Should someone that wants to have kids, have them if they carry this to pass on? So much could be brought up: God, Life, Quality of Life, Medical Needs, Late Term Abortion, and so on. Late term abortion would have never been an option, for my sister, but it’s a topic that would be brought up. It's hard to know how to feel and talk about. We put other animals down that are in pain, but we don't with humans. I'm not saying we should. I just don't know how I feel about it all. 

  5. To make this random, online learning is going to work...I think. We've had our bumps. I took Isaak in twice, for tech support. I thought it was his account. Turns out he was using Teams in the browser, and not the downloaded app. Errors occur with that. He's good now. What's really wonderful is that he got a new ipad on Friday. It will work so much better than the old PC they gave him. Isaak likes that he can hear the teacher! No random kids talking. Homework is all put in one place.

    The district has made adjustments along the way. Kindergarten, first and second graders now have 1/2 days, with bigger breaks. I think that's a smart move.

    What do you think about online learning? Is it working where you live?

2 comments:

mail4rosey said...

I wish wish wish we were doing online learning. We were not given the option. Even teachers who teach 'online' have to teach from the school, and are still thrown into the student population for morning duty, lunch and transitions. I wasn't given the opportunity to even do that, though I tried. I am face-to-face with a class full of students in every classroom. I get that parents have to work and have no place to put their little children, but I teach older ones, so I think distance would be more possible. No use crying over spilled milk, it's not an option for us where I work, period.

Congratulations on the beautiful new arrival to your family. Challenges and blessings come with all children. Maybe she will bring the family even closer together. Though your family already seems wonderfully close.

Wishing you a fab day!

Theresa Mahoney said...

What a beautiful baby! Congrats on the new addition. I'm with Rosey. All babies come with challenges and blessings, some more so than others. Your sister now has experience raising a child with Trisomy 18, so maybe it will be a lot smoother sailing this time around. Not that the illness will magically go away, but her needs will be addressed more quickly now that her parents have more knowledge and experience with this illness.

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