Thursday, January 12, 2017

Surgery Was a Success

My nephew Emerson that has Trisomy 18 has been battling breathing problems, since the fall. He's been in and out of the hospital 3 times I think - I kind of lost track. My sister kept telling the hospital that she thought possibly some of the problems were from a hernia that he's had, since birth.

The doctors kept pushing that thought away. They noticed he was having quite a few seizures happening. Instead of looking more into his hernia, they focused on his seizures.

At that point he was in pain, upset, doing this strange breathing thing, tired and not himself. Only 1/2 of those symptoms were from his new seizure meds.

Prior to this fall he was a happy little guy!

After this last MRI they found out that his hernia was pushing his colon up and down. It was moving its way up into his chest cavity.

Yesterday he was prepped for surgery:

Little Emerson keeps loosing teeth. That front one is loose right now. His glasses are tinted to help with his seizures. I stole this photo from my sister.

He had a hearing test, while he was out. His hearing keeps getting progressively worse. They are looking into Trisomy 18 kids to see if hearing loss is common. 

His seizures are the same. He's always had some. Hopefully they don't get worse.

His surgery on his hernia was a success. I hope he starts being more his smily self. 


~ Noelle said...

Oh my.
See, a mom knows her kid!!!!
Glad they finally are moving in the right direction. Hope that brings relief.
I love Emerson posts :) every time we go through Emerson, GA I think of him :)

Theresa Mahoney said...

Glad it was a success. The colon getting pushed up sounds painful! I hope he feels better now!

Mandy said...

Wow. I feel so bad for Emerson and his parents. It must be terrible to see your child suffering. I hope the surgery helps him with his breathing … and perhaps lessens the seizures maybe? He looks adorable in the picture! :)

Faythe said...

So happy to hear that Emerson is recovering. Doctors need to listen to us moms. We are more in tune with how our child acts and feels. Good for you sister to speaking up. It is hard to believe that Emerson is already at the teeth losing age. He has grown so much since you introduced him to us :)
Thanks for stopping by. My desktop has been broken over a year and since my hospitalization a year ago this week, I just don't have the energy I did, or $$ to get things fixed to blog. Thanks for checking in :) hugs, Faythe

Terra Heck said...

Glad to hear the surgery was a success. Too bad he had to suffer for a while before they decided it was the hernia.


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