Monday, March 20, 2017

Nephew Time

Last week was hectic for sure. My 5 year old nephew Emerson went to the hospital again. I can't even count how many times he's been in this year. He's the nephew I have that has Trisomy 18, which is too much of the 18th chromosome.

It started with him going in awhile back because he wasn't able to breathe very well. He went in and out of the hospital about 3 times for that. My sister wondered the whole time if it was from a hernia he had - possibly it grew. Instead of checking that, they were looking into small seizures he was having. That wasn't his main problem. The hernia was. The hernia was finally fixed. It was pressing on his lungs, and colon. The surgeon doctor decided to put in a tube that would help flush him out when he needed to go to the bathroom. Before the hernia grew he had no problem going to the bathroom.

Since then the flush tube has been a huge problem. We all wish it was never put in. His little body doesn't want to accept this foreign object inside him. He's fine while he's on antibiotics, starts to go off them, then he's a mess. Recently the antibiotics were making him sick. He starts draining through the tube, he gets a fever, his white blood cell count goes up, and he's not himself.

After a few days in the hospital he's fine again. The IV fluids help!

It's a back and forth affair.

Last week at the end of the day I went over to watch my other 3 nephews, and my 2 sons to help out. I was supposed to pay my sister back with a date night. Instead it was a hospital trip night. One nephew was closed into his room because they thought he had Strep Throat. He ended up testing positive to that. Yuck! That's like the 2nd or 3rd time he got that this year. When it rains, it rains hard! He's the one that's Mica's age.

I really only had to watch 1 kid with all 5 I had to be responsible for. Mica, Isaak and my nephew Elijah played and played. No fights! I love watching Elijah and Isaak play together. They are such great buddies. They are only 2 months apart.

They played basketball, on the trampoline, and some video games. They included Mica too. I wanted to get a good photo of just them though.

The one I had to watch like a hawk was Edison - the almost 3 year old. He usually wants nothing to do with me. We became friends after a little time. We made faces at each other. He's really into Back to the Future, so we watched that.

Edison looks like his brother Elijah above!

Edison and I finished the evening out by reading lots of books! He kept handing me Sandra Boynton books, which I've made up my own songs to them. Edison enjoyed me singing to him. He kept say, "Again!" But his favorite word is, "What?" 

Elijah had his big friend birthday on Friday. The only thing he asked for was Orange Fluff for dessert. His Dad was too busy cleaning, and preparing for his party to get the fluff. We checked 3 store's deli sections. No Orange Fluff. I call it "Orange Crap" because I don't like the stuff. Ha! 

Emerson's (the one in the hospital) old Occupational Therapist came in to see him when my sister was feeling really low. My sister told her about the many hospital visits, some doctor's not making time to see him, and missing Elijah's birthday, and him not getting the one thing he asked for. That sweet girl went home to make Orange Fluff. She brought it to Elijah the next morning for breakfast. It's so crazy how something so simple can bring tears to your eyes. Things can be so dang frustrating, and turn your emotions around like a snap of a finger. Then you feel blessed. Orange Crap turned into Orange Fluff Gold in my mind.

What has made you feel blessed this week?


~ Noelle said...

Awe. I hate that it's all coming down at once for them. Glad you're there to help out... must be nice to have family near. Give hugs to Emerson for me:)

Theresa Mahoney said...

Cousin time is the best time. I love it that my girls are close with most of theirs.

That OT sounds like an angel. It is so sweet when someone goes out of their way to brighten the day of another, especially a child!

cheap glasses said...

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mail4rosey said...

Aw that is SUPER sweet that she went home to make the orange fluff!! I'm sorry he's having such a go of it. I hope that's over for him soon and he's back to himself. I'm sure it's hard on everyone to see him going in and out of the hospital.

The kids are all sure cute. I always think it's awesome to 'babysit' the kids in the family. Sounds like you do too. :)

Indah Nuria Savitri said...

They are super cute, Alissa...I have had a rough half of a week because of this bad flu! But I'm blessed I have my hubby taking care of me :)


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